“Affects approximately 30,000 children in the U.S. if all forms are considered. This is comparable to the number of people affected with cystic fibrosis in the U.S. According to the Pediatric Cardiomyopathy Registry, one in every 100,000 children are diagnosed with symptoms each year. This number is conservative though, and for every diagnosed child there is another undiagnosed child unknowingly at risk of premature death.”

Children’s Cardiomyopathy Foundation (http://childrenscardiomyopathy.org/)