“WHEREAS, thrombocytopenia-absent radius (TAR) syndrome is a rare genetic condition characterized by the absence of the radius bones in the forearms and low levels of platelets in the blood (thrombocytopenia); and,

WHEREAS, thrombocytopenia prevents normal blood clotting, resulting in easy bruising and frequent nosebleeds, with the potential for life-threatening episodes of severe bleeding in the brain and other organs; and,

WHEREAS, thrombocytopenia usually appears during infancy and becomes less severe over time, with platelet levels often normalizing in later childhood and into adulthood; and,

WHEREAS, the physical findings and severity of TAR syndrome vary among affected individuals and can include skeletal abnormalities of the arms, legs, or hips, as well as heart defects, kidney defects, and difficulty digesting milk.”